Tuesday, May 26, 2009

Reality with DS a far cry from bleak forecasts, parents say

Parents of children with Down syndrome say the healthy, fulfilling lives of their children, like Conor Wright, 18, are a far cry from the bleak picture often given by doctors delivering a Down syndrome diagnosis.

A new federal law is supposed to “better inform medical professionals and parents about the realities of the genetic condition” instead of focusing on outdated information and the worst possible outcomes, advocates say.

Better health care and inclusion mean that people with Down syndrome are living longer and more meaningful lives — attending regular schools, holding full-time jobs, playing an active role in their communities, and some even driving cars and attending college. Conor’s mother, Joyce Wright, says “Life is good,” says Joyce Wright, Conor’s mother.”There are challenges, but the positives so outweigh the negatives.”

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